Well little man got admitted to
CMH on Monday. He has been struggling for several months just never being able to completely get over whatever it is that he is fighting. He gets on antibiotics and gets sick soon again after. Well the mommy in me just continued to fight this feeling like something was not right. I felt that I was putting a band aid on the problem but never
completely fixing anything.
So what we did find out was Phoenix had two new areas of pneumonia in his lungs. Beyond that we are just waiting to see. He is on IV antibiotics. He got a PICC Line placed on Monday, and I have to say I am so much happier with this than a regular IV. His little veins just can not hold them and if it does not have something going though it 24/7 it's lost. Which in turn means a lot of pokes. The PICC one poke, he can get almost all blood draws off of it, and he can still move and play! So for now we watch and wait. We see if these new medicines are working and go from there.
There is still this horrible feeling in the pit of my stomach that something else is going on, that there is something that we have not put our fingers on yet. I have always felt like we had a "control" of things with his CF. (Don't get me wrong CF has a mind of it's own, but I felt like we knew what we needed to and knew how to handle things.) Right now I feel like we are slowly losing ground and little by little I am seeing how hard it is for my little man to bounce back. Maybe I am over thinking this and maybe it's just nothing, but this time I really feel like there is something more going on. I guess time will tell.
For now he is loving all the attention he gets from the pretty nurses! Each day he tells us that they are his best friends!
Several people have asked for the link to send cards so here it is:
All you need to know is Phoenix Entrikin age 3!
Thank you to everyone for all the love and support these last few months, I know that we will get this all figured out!
