I am a wife and mother. We have five wonderful children, our youngest, Phoenix, was born with cystic fibrosis, GERD, Tracheomalacia, and Bronchomalacia. Every morning I thank God for one more day with my amazing family.This is Phoenix's journey.
Well what a year it has been! We have been through so much and life keeps on changing!
Our amazing little man turned 5 years old! Of course we celebrated in true Christmas fashion!
Little man just got out of a short stay in the hospital and got some further testing completed!
2012 Jingle Bell Ride! Santa Phoenix ready to collect toys!
Big Brother Willy Giving me Medicine in my G-tube for the first time by himself!
We have so many things to be thankful for this year! Phoenix got the honor of helping with this years Brown County Jingle Bell Ride! I do not think that this little boy could of had a better day! That grin stayed on his face all day and night. Everyone that would listen got to hear the story of Santa Phoenix riding in the parade and collecting presents for the boys and girls! Some very special ladies made sure that Phoenix has the most magical day ever, words can not express how grateful we are.
Big Brother Willy had surgery this week and Phoenix was very worried about him getting taken care of! Well as soon as Willy was home from the hospital Nurse Phoenix jumped into action. Getting him drinks, making sure he was taking his medicine, and getting him whatever he would need! Well tonight Willy got to give Phoenix medicine in his g-tube all by himself. Phoenix said he did a great job! Willy and Phoenix are such and amazing pair! Willy is wanting to learn how to take care of Phoenix and Phoenix loves knowing that Willy can take care of him!
Well it's time for treatments! We want to wish each of you a very wonderful holiday season! We are thankful for each of you that continue on this journey with us!
Well life comes and goes! We continue to move forward and face things head on.
When people hear CF they always ask if Phoenix is affected more by his lungs or GI. Well our warrior struggles with both. It seems like just when we get one under control the other rears its ugly head.
We had a hospital stay and surgery at the beginning of October. We found out right before this admission that he was fighting the nasty P word. Yep, psuedamonas is back. We did Cipro and started the TOBI.
Big brother is having surgery this week so tonight we got the Christmas tree put up and the stockings hung. This is something we usually do on Thanksgiving but we are not sure that Willy is going to be home so we did not take any chances! We do this as a family every year and this year was not going to be any different.
Sorry for the short post, and I will try to do better at updating. For now we are still here, we are still moving forward, and we are kicking CF butt as a family!