It's hard to believe that he is old enough to help! Phoenix has really been taking interest in learning how to do things himself. He can now connect and disconnect his g-tube.
It was great to see this in our little town! Yes, I did follow this truck around until he stopped to eat so I could take a picture! What a huge statement!
As we approach Thanksgiving we have so much to be thankful for, and this year we are excited to get to spend it as a family! With Dennis' job we sometimes have to do things late or early for the holidays!
So little man has been struggling! GI and ENT issues have really had him down for awhile, but we avoided a trip to the big house! :-) This weekend he started with a very rough cough so we are keeping an eye on that. We will venture to CMH on Dec. 1 for follow up with CF Clinic and to get his liver scan done.
The month of alone the CF community has been rocked with the passing of 7 amazing CF fighters! (these are just the ones I know of) One beautiful boy was only a week old, my heart breaks when I hear of these angels earning their wings. We need a cure!




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