Looking back

It is crazy how far we have come over the last three years! We have loved and learned so many things along the way. The first year we struggled to keep our heads above water as we battled to figure out what this disease was and what we could do to save our baby. No we stand on our tip toes and have learned to hold our breaths a little longer as we continue to try and understand this disease and the affects it has on Phoenix everyday.
We take each day as it may come and at nights end are grateful for what we have been given. We have learned to cherish the little moments and have come to realize that nobody is guaranteed a tomorrow.
Thank you for staying with us on this journey and fighting this fight with Phoenix. I will try and be better at updates, and get some more recent pictures posted.
They say that when your child is first diagnosed you go through stages of understanding. Well it seems that I bounce around in mine. I am so grateful for the CF family I have built through this blog, you have pulled us through a lot of tough times!
So for now we send our hugs and loves!