Well it was another day with more tests and not anymore answers. Phoenix has lost some more weight, but has a PICC line in and is getting TPN and Lipids. He is still not allowed to eat and this is all so hard for a little boy to understand.We have been assured that we will have a plan in place tomorrow. I try to hold out the hope that this is true but I do not want to get my hopes up either.
It's hard to believe in his four short years of life that Phoenix has gone through so much. He tries to keep a smile on his face, but this hospital stay has really tried little man and his Christmas spirit.
Sorry for the lack of pictures on his birthday, Phenny was still very sedated and pictures were not the best.
Well for now we wait, and try to be patient.