I am a wife and mother. We have five wonderful children, our youngest, Phoenix, was born with cystic fibrosis, GERD, Tracheomalacia, and Bronchomalacia. Every morning I thank God for one more day with my amazing family.This is Phoenix's journey.
Well little Phenny was brought to CMH by helicopter last night! He is stable and we are seeing some improvement. He is scheduled for surgery on Tuesday, we hope this will bring relief and answers. These last six months have really taken a lot out of Phoenix and us as a family. Phoenix has struggled to adapt to all the new medications and time that it takes out of his day.
I watch in amazement every day at the strength and courage he continues to show and teach us about. This hospital stay has been very hard on the little kids so if you see one of them please give them an extra squeeze! The above song has really spoke to me these last few ekks. Take a moment to really listen to the words. I know there were several times in the song I saw my own life. If CF has taught me nothing else it has taught my, "Don't Miss Your Life." It's those little moments that count and really mean the most!
Several have asked about sending cards so here is the link: